The members of the Cystic Fibrosis Association will protest in front of the Ministry of Health on Monday at 11:55 a.m., because, as they say, despite the promises they have received from the Ministry, the Health Insurance Fund (FZOM) and the Departments where their patients are treated, there is no improvement in the treatment of the disease, and their health condition is deteriorating.
“As you know, the Cystic Fibrosis Association has been actively campaigning to encourage the competent institutions to introduce CFTR modulators for all patients. Therapy has not been provided until now, and we have not received an answer as to whether it will be provided and when. The Cystic Fibrosis Association is organizing a peaceful protest that will take place on December 26th, Monday 11:55 am (5 to 12 pm) in front of the Ministry of Health. It would mean a lot to us if this time too we could get your support and help to introduce the general public to this issue,” said the Association.